Saturday, June 6, 2009

What a crazy life!

Bryson 2/26/09 In the NICU

First time holding him! I got to hold him for about 5 minutes, not long enough!

After surgery! You can't see, but there are 21 IV pumps hooked
to him! If I didn't know better, I would say, that is not my baby!

Eyes opened!

Yeah We are home!

Well I am going to make an attempt at blogging. Since I can't figure this out exactly the pictures are first before the text. I hope I can figure this out! Our life is crazy, just like everyone else's! As an update we have three amazing little boys! Dallin is 5, Camden is 3, and Bryson is 3 months. The biggest story of our lives right now is our little miracle baby Bryson. Bryson was diagnosed with a heart defect when I was 22 weeks along. He has transposition of the great arteries. I had to deliver down at the University of Utah Hospital so Bryson could be transported to Primary's through the hallway.

Bryson was born on February 26, 2009 at 7:47am. He weighed 7lbs 1 oz and 20 inches long. As soon as he was born he was passed through a window into the NICU. He was stablized and then transported by the life flight team over to Primary's.

When he was 5 days old, he went in for open heart surgery. Prior to surgery they do a TEE, where they stick a ultrasound probe down his esophagus. When they opened his chest, they say the probe, this was a big problem. They had punctured a hole in his esophagus. We were told about this, and they would have to see if he was strong enough after heart surgery to endure another surgery.

We were very blessed he did wonderful through the heart surgery and so they went ahead and repaired the hole the same day. He was in surgery from 7:30am to 6:30pm. It was a long and hard day. Now Bryson will be unable to eat for 10 days while the esophagus heals. The esophagus finally heals, and when we start trying to get Bryson off the ventilator he is not doing well. He takes really shallow breaths and then his breathing rate goes through the roof trying to get enough oxygen. At first they thought he just need to strengthen his lungs, but after 3 days of this, they did some addtional testing and we find that his diaphram is paralyzed. Here we go for surgery #3. The day after surgery we are able to test him off the ventilator and then it is taken out! I was so excited for this day, that meant I could hold my baby! It has now been 3 weeks since I held him!

Bryson didn't pass a swallow study, it showed when he swallowed it would go into his lungs instead of his stomach, so his feeding tube has to stay going into his intestine. This also means we go home with a feeding tube and also oxygen. Bryson is on just a little bit of oxygen, but he doesn't want to give it up. On March 23, we were released from the hospital and going home! Oh happy day!

After two weeks of being home, it is time for a doctor visit! We have another swallow study and an EKG on his heart. The heart is doing great and he was able to swallow. The feeding tube is then moved up to his stomach and in 24 hours we were able to try to feed him by mouth! Mind you, the poor little guy has never had food in his mouth or stomach. The next week was a bit rough, we had to feed Bryson 2 oz every two hours. It would take him 1 hour to eat the 2 oz. Needless to say I felt all I was doing was feeding Bryson.

Gradually he has gotten better at eating, and just last week were able to get rid of his feeding tube and one week prior to that we took him off of his oxygen. It is so nice to be able to carry him from one room to another without packing the tank!